Showing posts with label ill. Show all posts
Showing posts with label ill. Show all posts

Thursday, October 20, 2011

What a terrible day.

Such conflict in my emotions today, caused by the passing of two people.

Firstly there is a sense of happiness that the world no longer hosts one of its cruellest dictators. A man who has ruled with tyranny for decades, and created a country so misunderstood by the world, that until a few months ago most thought they were a nation of terrorists, and a country full of trouble. As the story has developed, it has become clear that Libya stood for so much more, and was determined to cease the movement of the North African nations against their rulers, and finally stand up for what they believed in.

Today they gained their freedom. In what some might describe as an unjust and bloody way, but it has ended the terror he inflicted once and for all. The name Gadaffi will no doubt live of for years, with the likes of Hussain and Bin Laden, and connected to their distant crazy relatives of tyranny like Hitler. All crazy people who used terror and torture to install themselves in power, and who turned people against their own in the promise of a better life in return for inflicting pain and hate upon their own.

The past few years have seen the fall of most of there hateful people, and we can only hope it was assisted by the West for the right reasons, and words like money and oil don't start creeping up in agreements. The British Empire was historically greedy and selfish, so let us not see the birth of the American Empire for this generation.

Then I have to turn my attention the the conflict in my own mind. Another passing has occurred today, which has provoked a completely different reaction in my mind and heart. The father of a dear friend of mine. In fact it is fair to say the entire family have been dear to my heart for many years now. He has been suffering what most would consider unbearable pain for as long as I can remember. The kind of discomfort you would beg to be freed from, and the sort of decline in health that makes a grown man weep to even consider, let alone experience.

Throughout the twenty years I have had the pleasure of knowing him, he has fought tooth and nail to maintain his quality of life, not giving up driving until it was impossible, refusing to roll over and let illnesses get the better of him, and never really feeling sorry for himself. I know many people who have suffered illness and pain, but few who have been so nobel in their journey, and who have maintained such dignity.

Having lost my mother only a couple of months ago, I can truly empathise with how Steven is feeling right now. However as mums decline was so one directional it was always clear to see where things were going. For Steven and Andrew (brothers) they have had to watch their fathers health behave like an ECG, up and down, bottomless lows only to bounce back to the top of the scale again. Strokes and mini strokes which rewrite the medical rules of how many one person can endure.

The world has lost a true fighter in every sense of the word tonight, and I say proudly that it has been a true pleasure being part of the life of such a true gentleman, father and husband to the Warwick family.
My thoughts are with you guys, and if you need a single thing, you know where I am.
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Thursday, January 27, 2011

Hmmm, a downturn or a bump?

Well I'm hoping its just a bump along the way, but not too sure. But mum is now back to not wanting to eat or drink much. Becoming tired and weaker by the day, and relying much more on the wheelchair to get about.

The steroids are being reduced, and since dipping from 2mg twice a day she has slowed down. Even on 2mg once a day she was still eating and quite active. But now on 0.5mg a day she is actually using the walker around the house rather than carrying it, prefers to be IN the wheelchair when out and about, and is really off her food and drink. Its a chore to eat. My worry, dehydration.

Yesterday we went to St Thomas's hospital to get mums "surgical appliance" also known as a wig, which she seemed very happy with. However today while getting ready for St Christophers she said she would not be wearing it as it was a bad fit and looked silly, and quite frankly could not be bothered to put it on.
She added on the that she was "very very sick".

A little while later we toddled off to the hospice for a meeting with Karen the nurse. Enquiring into mums health was like asking a 2 year old where the put the car keys. Not really willing to discuss it much. Changing the subject whenever possible. All the symptoms were to be blamed on any medication that she could remember she was taking, and promises were made that she really has no interesting on following through with. Using a nasal spray, trying to drink more, and seeing the GP later. However she WILL be seeing the GP, I will make sure of that.

A number of things could be contributing to this "bump" in the road but without tests and trying meds we will never find out.

We are returning to the same familiar "no I'm not doing that" attitude, which usually results in an ambulance and a week in hospital. Sadly it seems we have again passed the point of reasoning, and she just thinks doing nothing about it, and sleeping more will solve the problem. So fingers crossed the GP can put her on the right track, although at this rate a referral to the hospital.

So, back from the hospice now, lunch made for mum, just waiting on the carer. This afternoon, dog walks then off to the GP @ 3.30 to get mum seen.

Here we go again?
Regards
Michael

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